Christmas
Well, another Christmas has passed. This one is a special one for sure. Thank God for such loving family. The new year is almost upon us.
On December 20 th we went to clinic. Bad news my FVC is down from 68% to 38%. This means that my breathing is much worse. My numbers should have fallen 6-15% but they fell 30%. The doctor said it was tme to talk to a Hospice. We are waiting for a hospital bed now and Jody is now helping me in and out of bed. I am still getting around good in my wheelchair but now I spend more time sleeping in it. I am a little weaaker but I am maintaining my weight and I still can eat, but now I have trouble with my jaws not wanting to alighn right when i am tired. My neck is weaker and i have little control of it anymore.
I still am independent and active and can walk a littlle and my hands are still working ok. I am going all over the area with my van and wheelchair. Thank God for the abilities I still enjoy.
On December 20 th we went to clinic. Bad news my FVC is down from 68% to 38%. This means that my breathing is much worse. My numbers should have fallen 6-15% but they fell 30%. The doctor said it was tme to talk to a Hospice. We are waiting for a hospital bed now and Jody is now helping me in and out of bed. I am still getting around good in my wheelchair but now I spend more time sleeping in it. I am a little weaaker but I am maintaining my weight and I still can eat, but now I have trouble with my jaws not wanting to alighn right when i am tired. My neck is weaker and i have little control of it anymore.
I still am independent and active and can walk a littlle and my hands are still working ok. I am going all over the area with my van and wheelchair. Thank God for the abilities I still enjoy.
